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Update epilepsy-omop-data-set.md
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docs/epilepsy-omop-data-set.md

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@@ -76,22 +76,18 @@ Our future plans include publishing our technical documentation on GitHub, conti
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ALS TDI ARC Study, mapped to the Observational Medical Outcomes Partnership Common Data Model (OMOP CDM), restructures a subset of the ARC Natural History Study into the OMOP CDM structure and maps a subset to standardized vocabularies.
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> Note about EHR data: We are actively working to include electronic health record (EHR) data in future releases.
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### Complete Data Set and Documentation
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Neuromine Data Portal
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Location
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### CDM Version
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- OMOP CDM v5.4
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### Participant Summary
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- Total participants: 1,665
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- People with ALS, Asymptomatic carriers, Healthy controls
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- Total participants: XXX
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- People with epilepsy, XXX
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### Domain Mappings
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Includes Person, Observation (including ALSFRS-R), Measurement (lab results), Drug Exposure, Mortality, etc.
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Includes Person, Observation (including XXX), Measurement (lab results), Drug Exposure, Mortality, etc.
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### Dates and Timing
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Dates may be shifted for de-identification.
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Not all participants have complete data.
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## Custom Concepts
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Some ALS-specific variables lacked standardized OMOP vocabularies; custom/local concepts were created.
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Some epilepsy-specific variables lacked standardized OMOP vocabularies; custom/local concepts were created.
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## CDM Summary Counts
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(See original for detailed table.)
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(XXX Detailed Table)

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