Update stardustt-approach.md

Author: BoyceLab

docs/stardustt-approach.md

@@ -6,7 +6,7 @@ hide:
 
 ## 🎥 Presentation
 
-Watch Dr. Danielle Boyce present **STARDUSTT-ALS** — a new approach to capturing, managing, and analyzing “big data” in natural history studies.  
+Watch Dr. Danielle Boyce, mother of a child with infantile spasms, present **STARDUSTT-ALS** — a new approach to capturing, managing, and analyzing “big data” in natural history studies.  
 [![Presentation](https://img.youtube.com/vi/9h89iHEiIPs/0.jpg)](https://youtu.be/9h89iHEiIPs?feature=shared)
 
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