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Copy file name to clipboardExpand all lines: content/en/blog/data-harmonisation-healthcare.md
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@@ -282,8 +282,8 @@ For further reading on data harmonisation and its impact on healthcare, [source1
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- Nature. "A General Primer for Data Harmonisation." [Source](https://www.nature.com/articles/sdata201828)
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- BMC Medical Informatics and Decision Making. "Definitions, components and processes of data harmonisation in healthcare: a scoping review." [Source](https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-020-1022-9)
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- HealthIT.gov. "Common Data Model Harmonisation." [Source](https://www.healthit.gov/topic/scientific-initiatives/common-data-model-harmonisation)
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- BMC Medical Informatics and Decision Making. "Definitions, components and processes of data harmonisation in healthcare: a scoping review." [Source](https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-020-01218-7)
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- HealthIT.gov. "Common Data Model Harmonisation." [Source](https://www.healthit.gov/sites/default/files/page/2020-07/CDMH-Project-Summary.pdf)
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- NCBI. "Data Harmonisation and Standardization Efforts - Tools and Technologies for Registry Interoperability." [Source](https://www.ncbi.nlm.nih.gov/books/NBK493614/)
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This exploration into data harmonisation in healthcare highlights the intricate process and its significant impact on healthcare management and patient care. The concerted effort of all stakeholders in this domain is vital for achieving a more integrated, effective, and equitable healthcare system.
We are excited to announce that Harmony, an [open source](/open-source-for-social-science/) Natural Language Processing tool for data harmonisation, is now available on the Comprehensive R Archive Network [CRAN](https://cran.r-project.org/)!
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Previously, [Harmony R](/open-source-for-social-science/harmony-r-package/) could be installed using [devtools](https://www.r-project.org/nosvn/pandoc/devtools.html).
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Previously, [Harmony R](/open-source-for-social-science/harmony-r-package/) could be installed using [devtools](https://devtools.r-lib.org/).
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Harmony can be used to compare questionnaire items across studies, find the best match for a set of items, and identify different versions of the same questionnaire. Harmony is a collaboration project between [Ulster University](https://ulster.ac.uk), [University College London](https://ucl.ac.uk), the [Universidade Federal de Santa Maria](https://ufsm.br), and [Fast Data Science](https://fastdatascience.com/harmony-wellcome-data-prize/). It has been funded by Wellcome as part of the [Wellcome Data Prize](https://wellcome.org/what-we-do/data-science-and-health-trustworthy-data-science/wellcome-data-prizes) in [Mental Health](/ai-in-mental-health/), as well as UKRI.
We are running [workshops](https://harmonydata.ac.uk/harmony-tidal-workshop) to test Harmony so that we can plan [future development](/ai-in-mental-health/harmony-going-forward/) – see the [signup link here](https://ulster.onlinesurveys.ac.uk/harmony-online-eoi).
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We are running [workshops](/ai-in-mental-health/harmony-and-tidal-workshop/) to test Harmony so that we can plan [future development](/ai-in-mental-health/harmony-going-forward/) – see the [signup link here](https://ulster.onlinesurveys.ac.uk/harmony-online-eoi).
Copy file name to clipboardExpand all lines: content/en/blog/sustainability.md
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@@ -77,7 +77,7 @@ _Question 4.6: If your software can be used as a library, package or service by
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If your software includes support for [Application Programming Interfaces (API)](https://en.wikipedia.org/wiki/Application_programming_interface), whether these be functions, data types, or classes offered by a library or a collection of REST (https://en.wikipedia.org/wiki/Representational_state_transfer) endpoints or web services, then these need to be documented if you want them to be used. Code examples alone may not provide enough information on how someone can use your API in their own code.
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From structured comments in the code, generating complete, structured API documentation can be done automatically with, for example, JavaDoc (http://www.oracle.com/technetwork/java/javase/documentation/index-jsp-135444.html) (for Java), Doxygen (http://www.stack.nl/~dimitri/doxygen/) (for C, C++ , Fortran or Python), Sphinx (http://sphinx-doc.org/) (for Python). Certain REST frameworks, such as Django(http://www.django-rest-framework.org/), also support auto-generation of API documentation.
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From structured comments in the code, generating complete, structured API documentation can be done automatically with, for example, JavaDoc (http://www.oracle.com/technetwork/java/javase/documentation/index-jsp-135444.html) (for Java), Doxygen (http://www.stack.nl/~dimitri/doxygen/) (for C, C++ , Fortran or Python), Sphinx (http://sphinx-doc.org/) (for Python). Certain REST frameworks, such as [Django](http://www.django-rest-framework.org/) also support auto-generation of API documentation.
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_Question 4.8: Do you publish your release history e.g. release data, version numbers, key features of each release etc. on your web site or in your documentation?_ A release history allows users to see how your software has evolved. It can provide them with a way to see how active you are in developing and maintaining your software, in terms of new features provided and bugs fixed. Software that is seen to be regularly fixed, updated and extended can be more appealing than software that seems to have stagnated.
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[email protected]. This makes it easy for users to identify the e-mail address on your website or within your documentation, and it helps you to separate your support queries from all of your other e-mail. However, a personal e-mail address is better than nothing if you don't have the means to provide a dedicated support address.
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See our guide on Supporting open source software(http://software.ac.uk/resources/guides/supporting-open-source-software). Its advice applies to supporting closed source software too.
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See our guide on [Supporting open source software](http://software.ac.uk/resources/guides/supporting-open-source-software). Its advice applies to supporting closed source software too.
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_Question 5.4: Are e-mails to your support e-mail address received by more than one person?_ It's easy to forget about an e-mail, especially one that's asking difficult questions, so your e-mails to your support e-mails address should always be received by more than one person. One person should still have the primary responsibility of handling users' e-mails, but others can step up to handle e-mails if necessary, so that a user's query will be acknowledged even if one of you is on holiday, ill or otherwise indisposed.
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See our guide on Supporting open source software(http://software.ac.uk/resources/guides/supporting-open-source-software). Its advice applies to supporting closed source software too.
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See our guide on [Supporting open source software](http://software.ac.uk/resources/guides/supporting-open-source-software). Its advice applies to supporting closed source software too.
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_Question 5.5: Does your project have a ticketing system to manage bug reports and feature requests?_
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_Question 12.4: Are your test results publicly visible?_
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Publishing test results from frequently run tests (e.g. nightly build and test runs) can give your users reassurance about how, and how much, your software is tested. You can automatically publish test runs to your project website, or, alternatively, have test run results mailed to a developer's mailing list, or a mailing list dedicated to the test results. For example, see the [test results](http://build.mygrid.org.uk/ci/), for the [Taverna](http://www.taverna.org.uk/) workflow management system which uses [Jenkins](https://jenkins-ci.org) to build and test their code, and publish its results.
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Publishing test results from frequently run tests (e.g. nightly build and test runs) can give your users reassurance about how, and how much, your software is tested. You can automatically publish test runs to your project website, or, alternatively, have test run results mailed to a developer's mailing list, or a mailing list dedicated to the test results. For example, see the test results for the Taverna workflow management system which uses [Jenkins](https://jenkins-ci.org) to build and test their code, and publish its results.
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Question 12.5: Are all manually-run tests documented?
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_Question 14.2: Do you have a contributions policy?_
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A contributions policy provides information to users on what they can contribute (e.g. bug fixes, enhancements, documentation updates, tutorials), how they can contribute it (e.g. via e-mail, patch files, GitHub pull requests), any requirements they must satisfy (e.g. compliance to coding or style conventions, passing required tests, software licensing), and what happens to their contributions once they have submitted it (e.g. how it is reviewed and then integrated into your code, documentation or web site). It also tells users who owns the copyright on their contribution. For information on how to manage contributions, see OSS Watch's Contributor Licence Agreements(http://oss-watch.ac.uk/resources/cla).
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A contributions policy provides information to users on what they can contribute (e.g. bug fixes, enhancements, documentation updates, tutorials), how they can contribute it (e.g. via e-mail, patch files, GitHub pull requests), any requirements they must satisfy (e.g. compliance to coding or style conventions, passing required tests, software licensing), and what happens to their contributions once they have submitted it (e.g. how it is reviewed and then integrated into your code, documentation or web site). It also tells users who owns the copyright on their contribution. For information on how to manage contributions, see [OSS Watch's Contributor Licence Agreements](http://oss-watch.ac.uk/resources/cla).
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_Question 14.3: Is your contributions' policy publicly available?_
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Users may not contribute if they do not know that they can contribute. Publishing your contributions policy provides information to users on what they can contribute, how they can contribute it, any requirements they must satisfy, and what happens to their contributions once they have submitted it. It also tells users who owns the copyright on their contribution.
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For information on how to manage contributions, see [OSS Watch's Contributor Licence Agreements](http://oss-watch.ac.uk/resources/cla).
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_Question 14.4: Do contributors keep the copyright/IP of their contributions?_ Asking contributors to sign over their copyright and intellectual property to your project or organisation can put off users from contributing. It, in effect, asks them to give away ownership of something that may be novel and which may represent a key aspect of their research. Allowing contributors to keep their own copyright and intellectual property removes this barrier, thereby making contribution a more attractive option. It also contributes to promoting a community round your software – everyone sharing their outputs rather than handing them over to a select group. For information on how to manage contributions, see OSS Watch's Contributor Licence Agreements(http://oss-watch.ac.uk/resources/cla).
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_Question 14.4: Do contributors keep the copyright/IP of their contributions?_ Asking contributors to sign over their copyright and intellectual property to your project or organisation can put off users from contributing. It, in effect, asks them to give away ownership of something that may be novel and which may represent a key aspect of their research. Allowing contributors to keep their own copyright and intellectual property removes this barrier, thereby making contribution a more attractive option. It also contributes to promoting a community round your software – everyone sharing their outputs rather than handing them over to a select group. For information on how to manage contributions, see [OSS Watch's Contributor Licence Agreements](http://oss-watch.ac.uk/resources/cla).
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_Question 15.2: Does each of your source code files include a copyright statement?_ It's easy to distribute source code files, and this separates the code from any copyright statement that might be on your web site or in your documentation. To cover this eventuality, and remove any ambiguity about ownership, it's good practice to include a copyright statement with each of your source code files, as a comment, or, if the language permits it, as a string constant.
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## GAD-7 vs PSS-10: A Comparative Insight with Harmony
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A significant challenge for psychologists often comes down to harmonising different questionnaires such as [GAD-7](https://www.nhs.uk/mental-health/conditions/generalised-anxiety-disorder/overview/) and [PSS-10](http://www.macses.ucsf.edu/research/psychosocial/pss10.php). This challenge begins with trying to match the individual items of these two different instruments that assess anxiety disorder and stress perception respectively. For some meta-analyses you might need to compare the GAD-7 vs the PSS-10.
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A significant challenge for psychologists often comes down to harmonising different questionnaires such as [GAD-7](https://www.nhs.uk/mental-health/conditions/generalised-anxiety-disorder/overview/) and [PSS-10](https://www.corc.uk.net/outcome-experience-measures/perceived-stress-scale-pss-10/). This challenge begins with trying to match the individual items of these two different instruments that assess anxiety disorder and stress perception respectively. For some meta-analyses you might need to compare the GAD-7 vs the PSS-10.
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## Compare the items in GAD-7 English and PSS-10
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*[Other psychological instruments in areas such as depression and anxiety](/compare-harmonise-instruments)
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*[Harmonisation of alcoholism related instruments](/compare-harmonise-instruments/alcoholism)
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*[Harmonisation of autism related instruments](/compare-harmonise-instruments/autism)
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*[Harmonisation of autism related instruments](/compare-harmonise-instruments/autism)
In the realm of social sciences and mental health research, finding the right datasets can significantly streamline the research process. Key among this is the study of Anxiety Sensitivity, an area that has various implications for understanding and managing different anxiety-based mental health problems.
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[Harmony Discovery](https://www.harmony-archive.ac.uk/) is a valuable tool that aids in locating suitable datasets for this area of study. Leveraging large language models, Harmony matches questionnaire items and variable names corresponding to your research needs, making it easier and faster to find relevant datasets.
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Harmony Discovery is a valuable tool that aids in locating suitable datasets for this area of study. Leveraging large language models, Harmony matches questionnaire items and variable names corresponding to your research needs, making it easier and faster to find relevant datasets.
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## Simplified Search for Anxiety Sensitivity Datasets
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*[Narcissistic Personality Disorder datasets and studies](/discover-data/narcissistic-personality-disorder-datasets-and-studies)
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## Harmony Discovery: Tailored for Social Sciences Research
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Harmony Discovery connects with multiple data sources including the [UKLLC](https://explore.ukllc.ac.uk), Closer, the Catalogue of Mental Health Measures(https://www.cataloguementalhealth.ac.uk/), [HDR UK](https://www.hdruk.ac.uk/) and [ADR UK](https://www.adruk.org/), to present researchers with datasets about longitudinal studies pertaining to various topics, including ASD. With the help of large language models, Harmony matches questionnaire items and variable names, ensuring that the shortlisted datasets align closely with the topic of research.
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Harmony Discovery connects with multiple data sources including the [UKLLC](https://explore.ukllc.ac.uk), Closer, the [Catalogue of Mental Health Measures](https://www.cataloguementalhealth.ac.uk/), [HDR UK](https://www.hdruk.ac.uk/) and [ADR UK](https://www.adruk.org/), to present researchers with datasets about longitudinal studies pertaining to various topics, including ASD. With the help of large language models, Harmony matches questionnaire items and variable names, ensuring that the shortlisted datasets align closely with the topic of research.
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## Exploring ASD Datasets
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*[Personality and Temperament datasets and studies](/discover-data/personality-and-temperament-datasets-and-studies)
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