Clinical And Registry Entries (CARE) Semantic Model

Take CARE of your data! FAIRly!

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Full Documentation

You can explore the complete documentation here

The documentation includes:

• Detailed descriptions of all data elements
• Implementation guidelines
• Tools
• Exemplar data
• Additional resources

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Communication and Feedback

Your feedback is more than welcome and will help us improve the CARE Semantic Model.

Please use GitHub Issues to provide feedback or report problems:
https://github.com/CARE-SM/CARE-Semantic-Model/issues

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Cite Us

If you used CARE-SM in your work, please cite the following publication:

@inproceedings{caresm2024,
  author       = {Pablo Alarc{\'o}n-Moreno and Mark Denis Wilkinson},
  title        = {{Take CARE of your patient data: Clinical And Registry Entries (CARE) Semantic Model}},
  booktitle    = {Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Health Care and Life Sciences (SWAT4HCLS 2024)},
  year         = {2024},
  publisher    = {CEUR-WS.org},
  series       = {CEUR Workshop Proceedings},
  volume       = {3890},
  url          = {https://ceur-ws.org/Vol-3890/paper-11.pdf}
}

Previous publication:
Semantic modeling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data

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Acknowledgement

This work originated in the European Joint Programme on Rare Diseases (EJP RD), which received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 825575.

After the end of the EJP RD project, this work has been led and maintained by researchers from the Wilkinson Lab at Universidad Politécnica de Madrid.